The Shortage of Research on Adult ADHD

As Mentavi celebrates its Validation Study and enters an era of additional research initiatives, and as misinformation about ADHD spreads throughout social media, we will refresh our existing article about the shortage of research on adult ADHD with new information and perspectives from our team 

To help us make this article clinically sound and helpful while expanding our digital footprint in the area of ADHD research, please take a minute to provide your insight in response to the following questions.

Questions

1. Researchers point out that despite there being more adults with ADHD, and more research into adult ADHD, there is still a lack of guidelines around diagnosis, treatment and care. Why does that continue to be the case?

Part of the reason for this is funding–the majority of the money is focused on children and adolescents, and you can’t do research without funding. Additionally, even though more adults are receiving an ADHD diagnosis, it remains a pervasive myth that you can grow out of ADHD or that ADHD is a “childhood issue” that is simply not applicable to adults. We need to keep fighting this misinformation.

2. Are there more guidelines around the diagnosis and treatment of ADHD in children than it is in adults? If so, why?

There aren’t really guidelines for much of anything in mental health to be honest. The DSM-5-TR specifically says there is no “ADHD test,” and there is no test or set of tests that are required to confirm or rule out ADHD regardless of the client’s age. While this is intended to allow for professional discretion, it can turn into a barrier to care when people who do not conduct the evaluations arbitrarily require clients to get a specific type of test to receive treatment. For instance, I have had physicians with little or no diagnostic training in mental health tell me that my assessment is “incomplete” because I did not conduct a full-scale IQ, when there is absolutely nothing in the diagnostic criteria for ADHD about any specific IQ score in order to confirm or rule out the diagnosis! So, there is a need for more clear guidelines as far as ensuring that those who do not conduct assessments to understand what is and is not an ADHD evaluation.

Additionally, there are companies that have tried to capitalize on vague requirements to seriously cut corners on an assessment. For instance, I do reviews of telehealth platforms for a couple of online publications, and one gave me an ADHD diagnosis following a 30-minute “interview,” half of which was just the short version of the ASRS, a screening measure. I don’t think it is possible to get sufficient information about history and symptoms in 30 minutes, but they claimed they could confirm my ADHD diagnosis in that period of time. 

Basically, providers who are practicing ethically get the latitude to make clinical decisions using their judgment without overreach, but we also need guardrails in place to protect the public from a pseudo-assessment that does not collect enough information to answer the diagnosis question.

3. What’s the most significant difference in approach to evaluating and diagnosing children and adults? What about the differences in treatment?

ADHD is neurodevelopmental, meaning that if you have ADHD, you were born with ADHD. If symptoms develop later in life, that’s not ADHD even though some conditions that develop later in life can look like ADHD. So, one big challenge with adults is establishing that early childhood period. This does not mean, by the way, that you have to be diagnosed as a child or that having good grades as a child rules out ADHD (hi, ADHD psychologist who was diagnosed as an adult). You can establish how symptoms were masked, compensated for, or overlooked in childhood, but it can be challenging to establish that information. Not all adults have access to early childhood records or collateral to back up their memory. With children, though, it can be a challenge to establish symptoms if they are high-masking and adults in their life misunderstand ADHD (for instance, I have had teachers insist that my diagnosis is wrong because “I don’t see that in the classroom,” when I have clearly explained how I established that the child was masking).

With treatment, the medication recommendations are the same regardless of age (with differences in dosage, of course). For therapy interventions, the differences in treatment are pretty similar for ADHD in children versus adults–therapy with kids often requires parent involvement to address environmental factors in the home that contribute to symptoms, whereas adults usually implement the interventions themselves.

4. Are there any particular areas of focus within the topic where more research is especially needed? What specific questions or issues most need answers or attention?

Although there has been some progress, there absolutely needs to be more research on ADHD across gender and ethnicity. We still focus so much on white, cis males. While this does not mean that a white, cis man cannot experience misdiagnosis or barriers to treatment, but there is a dispiritingly massive gap in accurate diagnosis for BIPOC, female, and nonbinary individuals with ADHD. This is because existing research focuses on cis, white male experiences and symptom presentation, and because of clinician bias in assigning diagnoses. More awareness has been brought to this issue, but the disparities have not been addressed in research and diagnostic measures.

5. Has increased access to adult ADHD diagnosis and treatment such as telehealth resulted in more or improved opportunities or data to inform guidelines?

Telehealth has been amazing for improving access to an accurate diagnosis and treatment. Also, while social media is a bit of a mixed bag, access to more information on the different ways that ADHD symptoms can present has increased referrals because people realize that they could be ADHD and that ADHD can look more than one way.

With increases in telehealth, there has been improved acceptance to telehealth assessments–previously many people were under the misconception that you could not conduct a valid evaluation via telehealth, which there is now ample research to discredit. But again, there is no set guideline around this, just what is generally accepted and preferred.

6. Have there been any significant breakthroughs or insightful data to come from adult ADHD research in recent years?

I’m not sure your definition of what constitutes breakthroughs, but the highlights that come to my mind are:

  • Some people who choose to take medication for ADHD choose to take their medication on work days only. If you choose this, please be mindful that ADHD-ers who have not taken their medication today are at a massively increased risk for car accidents, so maybe have someone else drive if you do this.
  • I am not sure exactly how recent this is, but it used to be believed that you grew out of ADHD when you became an adult. We now know this is false. Adults can sometimes show fewer symptoms because 1) we have more control over our environments and can play to our strengths, 2) we have had more time to develop compensatory strategies to cope with our symptoms, and 3) ADHD-ers are at higher risk for accidents, so we do have slightly shorter life expectancies.
  • Adults who received appropriate treatment in childhood have lower rates of depression and anxiety.
  • The genetics that predispose us to ADHD also increase risk for depression, anxiety, and OCD, providing an explanation for one of the reasons why these conditions tend to co-occur.

7. What’s the most significant risk of a lack of guidelines around adult ADHD?

The risks of not having set guidelines go in two directions. I’ve touched on this before but will reiterate and expand on that here. A lack of guidelines leads to some providers developing their own set of guidelines for what they feel the guidelines should be, which can often be unnecessarily gatekeeping. For instance I spoke with a psychiatrist once who told me they would not prescribe ADHD medication to anyone who had not had a full neuropsychological evaluation because “That’s the gold standard.” Well, there actually is no “gold standard” in assessment; you’ve just fallen prey to the test developer’s marketing department. And now that psychiatrist is requiring clients to seek out a specialized evaluation that costs thousands of dollars, can take several day-long sessions, and books sometimes over a year in advance. This prevents people from getting the care they need.

On the other hand, some take advantage of the lack of guidelines as an excuse to cut corners and not actually put in the level of work that they should. I mentioned how I met with a provider who talked to me for 30 minutes, part of that meeting was administering a testing measure, and diagnosed ADHD when there was no way they had learned enough about my background and symptoms to know for sure that I had ADHD. A certain telehealth company who I won’t name here had their CEO arrested a while back because it was determined that the company was simply handing out ADHD diagnoses to any client who contacted them without doing due diligence, again because there is no set standard for these evaluations.

We both need more stringent guidelines, and less gatekeeping for arbitrarily high standards. We need providers who are thorough and accurate without inflating testing strategies to the point of not being affordable or accessible.


Amy Marschall e1729178549248 image

Clinically reviewed by Amy Marschall, PsyD. Dr Marschall has been a licensed psychologist since 2016 and currently owns a private practice, RMH-Therapy, where she provides therapy primarily to children and adolescents and does psychological evaluations and also provides ADHD assessments through ADHD Online.




The Expert Mental Health Care You Need Now

From ADHD to anxiety and beyond—we can help.
Start Your Assessment

Learn About ADHD Services in Your State

Live your best life with ADHD

Learn more about the three steps to Medical Treatment for ADHD
3 Simple Steps

More than ADHD?

From anxiety and depression to binge eating and obsessive compulsive disorder, ADHD rarely operates alone. Our Mentavi Diagnostic Evaluation screens for common comorbidities.
Learn More
Explore More

The constant present: Time blindness and ADHD

Time blindness and ADHD - “Where did the time go?” It’s a question that everyone asks from time

Prioritizing mental health for college students

As colleges and universities around the country start to come alive for a new academic year, the students

Should you tell your new employer about your ADHD?

Just like beginning a school year or heading off to college, starting a new job brings a mix
Articles

The constant present: Time blindness and ADHD

“Where did the time go?” It’s a question that everyone asks from...
Podcasts

Part Two: ADHD and Time Blindness with Dr. Ari Tuckman

Today, we’re continuing our conversation with Dr. Ari Tuckman, exploring...
Webinars

Mentavi Holiday Wellness Series 2025

This season doesn’t have to feel overwhelming. Join our FREE...

Curious about stimulant or non-stimulant approaches?

These terms refer to certain approaches to treat diagnosed ADHD. Mentavi Health / ADHD Online may provide stimulant approaches (certain medications under medical treatment that are generally considered Class II controlled substances) or non-stimulant approaches (medications generally not considered Class II, and/or therapy and coaching not related to medication).

A diagnosis and initial conversation with our treatment clinicians is key to the best path for you. The diagnosis is a key first step to determine if you have ADHD or other related conditions. Approximately 60% of patients with ADHD have co-occurring conditions such as anxiety or depression, for example. At the same time, patients who believe they have ADHD may not even have it. For those who do, there can be a variety of considerations into what kind of treatment works best to meet the patient where they’re at.

If you are not feeling right, your journey starts with the first step of diagnostic evaluation.

There may be a brief delay in service today between 12:30 PM and 1:30 PM ET. Thank you for your patience — we look forward to assisting you shortly.
 
The ADHD Online Team

Join Our ADHD Research Study

Mentavi Health is conducting ADHD research and is accepting a limited number of participants. Participants in our clinical study will get an ADHD Assessment at no cost. 

Who can join?
  • Age 19+
  • Primary language is English
  • Not previously diagnosed with ADHD
  • Not a current patient of ADHD Online or Mentavi Health
  • A resident of any of the 50 US states or DC (not including Puerto Rico or other territories)
 
Why participate?
Your involvement will help improve mental health care for everyone.
 
Looking to take our assessment? That’s available all day, every day, whenever and wherever is best for you!

ADHD Online will be closed on Monday, May 26, 2025, in observance of the Memorial Day holiday.

Live support will be unavailable on Monday, May 26. Send us an email or leave a message, and we’ll get back to you as soon as possible when we return on Tuesday, May 27.

Please note that each clinician sets their holiday hours and may be processing your requests during this time or may also be out.

Live support will be unavailable during regular business hours on Monday, January 20. You can always submit a request or leave a voice message. We’ll get back to you when we return.

Please note: Our clinicians have individual holiday schedules. Check with yours for their availability during the holidays.

Looking to take our Mentavi Diagnostic Evaluation? That’s available all day, every day, whenever and wherever is best for you!

Our site is open 24/7! You can always schedule an appointment, check out our podcasts, or read up on the latest ADHD information.

ADHD Online will be closed on Thursday, November 27 and Friday, November 28 in observance of Thanksgiving.

Live support will be unavailable during this time, but you can always submit a request or leave a voice message. We’ll get back to you when we return on Monday, December 1.

Each of our clinicians sets their own holiday hours. Check with your doctor for availability.

Are you looking to take our Assessment? It’s available all day, every day, whenever and wherever is best for you! 

Provide this form to your local practitioner. You could:

  • Send this link
  • Email the pdf
  • Print it out and bring it to your appointment

Ask your practitioner
to complete the form

In this form, your practitioner will request that ADHD Online continue to provide uninterrupted care

Return the form to us

You or your practitioner can return this form to us via email or fax it to 616-210-3118